Wednesday

Mia's feeds stopped last night because the doctors were not happy with the color of her residual (the stuff left in her stomach after a feed). As a result, they did an xray on her abdomen. Everything looked fine, but they noticed a possible inflammation of her pelvic bone. The doctors believe she might have an infection of the bone. On Friday they are going to run a bone scan to verify for sure. The good news is that if it is an infection, the antibiotics she is on right now will be the ones they continue to use for the bone infection, the bad news is she'll have to have them for about 6 weeks.

On a positive note though, they started her on her feeds again today and she has been processing them just fine. We believe that her feeds stopped last night because God needed the doctors to do an xray of her abdomen area to notice the pelvic bone. We continue to trust in His care over the situation.

Tomorrow they want to put a PICC line in Mia. It is similar to the central line she had that got infected, but it goes through a vein in one of her hands or feet. The nurses have a hard time getting IV's in Mia, so pray that the doctors will be successful with the PICC line.

Tuesday

Today was a great day for Mia. She got 3 cc's of milk at 11am and digested it just fine! So they gave her another 3 cc's of milk at 5pm. She'll get another 3 cc's at 11pm if she is able to digest the 5pm milk. You may be asking, how much is 3 cc's? It is probably close to the amount of a pen cap filled with liquid. It is a very little bit, but as she continues to digest she'll continue to get more milk. It also looks as though her infection is almost cleared. And she's even putting on more weight. As of tonight, she weighs 6 pounds 8 ounces!

Monday

Mia still continues to work on getting rid of her infection. Today she got fed breast milk again for the first time since last Thursday. She got 3 cc's of milk, but only processed 1 cc of it, so they are waiting to feed her anymore until tomorrow. She has had alot more awake time recently and it is nice to see her big blue eyes.

Giving Thanks

I have to warn you, staring at my daughter, Mia, may cause you to forget what you were doing, that you have other commitments, that you require food and sleep. She is that CUTE! Thank you for everything you have said, done, prayed for, and given to us. We have so, so much to be thankful for! Little Mia had an infection since last Thursday night. (Nov 15th). But the antibiotics have given her fever the boot, and tonight (Nov 18th) they removed her broviac central line from her chest. The doctors are pretty sure the broviac was the source of the infection and it had to go. Also, they were unable to draw blood from it, so it had outlived its usefulness. In the future, they are going to replace the central line, to feed Mia and give fluids and draw blood from. I am still hopeful that Mia can come home to Bakersfield for Christmas. God is so good to us. Have a very happy Thanksgiving and hug and kiss your families for us!

Mia Danielle

Mia Danielle was born October 12, 2007. She was born at 1:03 pm and weighed 5 pounds 4 ounces. She was 16 3/4 inches long. Mia had a blocked intestine and had surgery the next day to correct it. She was also born without an anal opening, of which she'll have surgery to correct that when she gets a little bigger. In addition, after she was born, we found out that her heart had not formed correctly, she has what is called an AV canal. As a result, 13 days after she was born, she had another surgery, a band placed on her pulmonary artery, because there was too much blood going to her lungs. This band is a temporary fix until she is bigger and will have heart surgery. Later we found out that her right nasal passage was partially blocked, however it did not appear to have any impact on her breathing. Because of all these different concerns, the doctors looked at her eyes, which appear to be just fine, and also her hearing, which is fine. In addition, they have done some genetic testing on her, of which she does not have Down Syndrome and she is not missing any genes. We are awaiting the results from one final test which will tell us if she has an extra gene, the CHARGE gene, of which we continue to pray that the test will be negative. We are so thankful to all who have prayed for her and continue to pray for her. She's been through alot and has done so well because of those prayers, so thank you!