Tuesday, July 15, 2008


Mama, I know that I was born at UCLA, but I really like USC...is that OK?


Maybe I can cheer for both teams?


You see, these bears are my friends...


Mia...what are you doing to your friend???


Hi everyone, I'm doing real good...Mommy and Daddy say so. I keep going to my therapy and I keep getting stronger. Thank you for praying for me...I'm working on getting bigger...just real slowly...tell my Mommy not to worry...God is in control, He'll help me get big and strong!

Saturday, July 12, 2008

Happy 9 Months Mia!


Today Mia is exactly 3/4 of a year...hard to believe. Her helmet seems to be fitting her better for the most part...it still sometimes slides, but it is less frequent. Hopefully as her head shape becomes more normal the helmet will fit better. She doesn't mind wearing it, which is so nice...we were worried she wouldn't tolerate it.

She got weighed again today and she is back to 13 pounds 3 ounces, so we are upping the calories in her formula. Pray that she will tolerate it and that this will help her to gain weight again.

Thursday, July 10, 2008

Today we went to feeding therapy. Mia is doing really well with taking a bottle, but she has a hard time with solids when I feed her. So we went to feeding therapy and the therapist gave me some pointers. It was encouraging to me because she told me I was doing a lot of things right and that Mia just needs time to get there developmentally. So it was really helpful.

On a different note, the night after we came home from LA, Mia's helmet was doing the same stuff as before, so tomorrow I am taking her back to LA to get her helmet refitted...so please pray that whatever they do it would work, we really want her to be able to wear it without it turning into her facing and leaving red marks.

On a positive note, the geneticists called me today and told me that Mia's latest genetics study came back normal. So now she has had a total of 4 genetic tests run on her and they are all normal. So praise God for that! It is He that knit her in my womb...that's why she is as she is. :)

Tuesday, July 08, 2008

LA

Today we went to LA for an EEG (where they stick the electrodes on her head and measure brain activity) and to adjust her helmet. Driving back into Bakersfield our car said 113 degrees, it was so nice in LA...we don't usually like LA, but we were missing the cool weather when we drove back in to Bako-land...they don't call it Bako for nothing. :)

This morning before we left we weighed Mia and she's 13 pounds 5 ounces! Praise the Lord! Every ounce counts!

So we arrived in LA around 11 for her EEG and they told us, "we need her to sleep through part of it so do you think you could keep her awake for one of her naps so she is real tired when she's here..." Obviously they've never had kids...it's near impossible to keep her awake, especially in the car, when she's tired! Thankfully though she was ready for another nap at 11 when we got there so she went to sleep pretty quickly during the EEG. In fact she was asleep for most of the EEG, at one point they flashed strobe lights in her face (when she was sleeping) and it didn't phase her a bit. At the end we asked for the results, but they wouldn't tell us a thing...they said the doctor would call us in a week or so...we'll just be patient until then.

After that we went over to the helmet place and they made a few adjustments and told us that she needs to wear it all day now for two weeks...and then we'll be back in two weeks for them to look at her again. When we got home though her helmet was doing some of the same stuff so pray that we'll sort through it!

Monday, July 07, 2008

Can You Say Roll Over?

Mia has been doing so well at therapy...check out her progress! Her arms are definitely getting stronger, thanks for praying...can't wait until she crawls!