Yesterday we went to LA for a couple of different things. It was time for Mia to get 3 small stitches out and they also wanted to check and see how she was doing. In the morning we noticed she had a hernia near her stoma, so we also got that checked out by a doctor. She didn't like getting her stitches out, but the doctors told us that her incision and stitches looked great. Next week Friday, I get to take off the steri-strips that cover the actual incision, myself. That probably won't be fun either!

After the stitch removal, a different doctor looked at her intestines and he thought they looked ok, we should just watch them for a couple of days and make sure it doesn't turn into something serious, so please pray that her tummy will start to feel better...I think it is because of all the new meds...that they aren't sitting well in her tummy...the good news is we got rid of some of them and in a couple of weeks she'll be back to only her seizure medicine and 1/4 of a baby aspirin a day.

Then they did an echo on her, where they used the ultrasound machine to look at her heart...and they said that everything looks PERFECT! The surgery couldn't have gone better, Praise God!!! And her cardiologist doesn't want to see her for another 4 months! That's how good she is doing!

After that, a quick chest x-ray to make sure her lungs were ok, which they were, and a quick stop at the pharmacy...and we were back to Bakersfield. And if her tummy/intestines sort themselves out by themselves then I don't think we'll need to go back to LA until January...that's exciting!

Not a big deal!

I just got a text from Lisa that the doctor didn't think her hernia was anything serious, just to watch it and they limited the amount of new medication she is getting.
Praise the Lord! :-)

Hernia

Mommy discovered this morning that Mia has a very impressive hernia underneath her colostomy site. It's hard and very painful for Mia. This sheds some light on why she has been crying and restless at night, her tummy hurts! And we didn't know what the problem was because her colostomy bag was covering it up. Being a level headed father, I immediately freaked out. We called the pediatric surgeon at UCLA, and he said, "Is her skin red?" no. (We have an appointment at UCLA today for her surgery follow-up) "Well, then I'll take a look at her when you get here today." I was very relieved to hear that the surgeon wasn't nearly as panicked as I was. So, Grandpa Flash and Mommy are driving to UCLA as I write this. They are going to remove some surgery stitches and the GI surgeon is going to examine her hernia bulge. Would you lift Mia and her tummy up in prayer today? Thanks and God Bless! Brad

Tomorrow Mia gets another Synagis shot...please pray that there are no complications, especially since this is so soon after surgery, but the doctors feel like the benefits outweigh the risks...since her body's immune system is so low, they don't want to risk any infections. And please keep praying for a routine/sleep schedule...we know we'll get there...just a little bit of time.

Hospital Photos

Here are some photos of Mia post operation. She is doing well, but not sleeping well at home...so please pray that we'll get back to a schedule that works for her.