More Pictures

I meant to put these up earlier this week, but time has gotten away from me again. I can't believe Calvin will be 6 months real soon! When did that happen? Anyway, these pictures are from MARE, Mia loves it. She can't get enough of it and is always so sad when she has to leave. They work on different activities with her that involve lots of speech. She is pretty much talking the whole time and then the activities also strengthen her muscles. In one of these pictures you'll notice her standing up and stretching to get the ring on the correct pole. That's fantastic for her little body!




This final picture was taken a day ago, I walked away to get something and came back to find Mia feeding Calvin her toy bottle. He was trying to suck on it which was super amusing. She was very proud of herself. We'll have to keep an eye on her to make sure nothing too little or too real goes in his mouth yet.

More on Breathing Treatments

So, we've been doing the breathing treatments for about a week and half and they've been working. By recommendation from a nursing friend, I've been doing the treatments before dinner and it seems to be helping to keep her from being too hyper before bed. Her coughing has gotten so much better. She doesn't cough at all during the night and even during nap time. The plan is to continue until Friday (that will be 2 weeks) and then try to ween her off the treatments to see if she does ok without them.

Today Mia got her new glasses. These glasses have a prism in the left lens to shift her center of vision. This should help her with her balance. She's to wear these glasses for a few hours a day and then her regular glasses at other times. The hope is that she'll then retrain her brain to focus in the right spot. We'll see how she does with these glasses over the next few weeks.

We decided to go with a different frame this time around, these are her big girl glasses. So far she's been doing just fine with them.

Pictures!

Groundhog's Day

The day has barely begun, but I'd like to redo it. We had a rough night last night, to say the least. It all began with Calvin wetting himself around midnight and I having to change his jammies. He was hungry and screaming and I couldn't do it fast enough for him. Well, in the process it must have woken Mia up because after I was almost finished nursing him I heard her fussing in her room next door. Sometimes this will happen and Daddy will go in and lay with her for a little bit and she'll go right back to sleep. Well, not last night, she was wide awake and slightly hyper again. She was up for about 3 hours...which meant we were up for about 3 hours. Eventually she did fall asleep, but it was very difficult. So you can be praying because we think this is related to the breathing treatments and aren't exactly sure what to do next. I did call the pediatrician this morning and I'm waiting to hear back from them.

Breathing Treatments

So we've been doing Mia's breathing treatments for 3 days now. We started on Saturday evening and she did not want to wear the pediatric mask that goes with the treatment. Well, I remember when we were in the PICU and she had some albuterol (spelling?) treatments for her pneumonia that they just sprayed it in her mouth and nose region and said that she breathes in enough for them to be happy with, so we did that on Saturday evening. She actually didn't cough all night, so on Sunday evening we tried decorating her mask and again she didn't want to use it, so we just sprayed the treatment in her face region and again, no coughing. Well, last night Daddy got to her to put the mouthpiece in her mouth for her treatment and we were excited because that was a step in the right direction we thought...until Daddy went to read her two books before bed and she was so hyper! She started crying when he was ready to leave and I went in there and laid with her for an hour while she calmed down, she was really jittery, poor thing! That was too much treatment!! Since it was working the other way and she wasn't hyper like this, we are going back to the old way. Of course now I have all these questions because it is working, like how long do we do it for, etc. I don't want to medicate my child if it isn't necessary, I guess it will be a trial and error thing to sort out how much and when she needs it. But, it is working.