Ups and Downs

Last Friday Mia had three seizures.  Up until then, she had been having 1 a day for the most part.  So, I emailed her neurologist and he said that if things didn't change by our appointment next week Thursday, he was going to have to rethink his entire strategy for her seizures.  After that, we suddenly had a long stretch without seizures.  I began to think, hey, maybe this is it and the medicine has finally taken full effect in her body.  But then, yesterday afternoon she had a seizure and today we have had two. 

It is just such a battle.  I have so many questions swirling in my head.  And it is somewhat of a guessing game towards figuring out what medicine is going to help.  And unfortunately, I've read too much information on the internet and in the back of my mind, I wonder...what if nothing helps? 

When I start to feel that way, I stop, take a deep breath, and then give it to God.  It doesn't matter what science or the world says.  If God says yes, then God says yes.  And I have to continue to trust.  He's provided so many miracles for her already.  I'm so glad I'm on His side. 

Satan tries to defeat us.  He will use every tactic to discourage us and bring us down.  And God never promised that life on earth would be easy.  But God does promise to never leave us. Deuteronomy 31:6 says, ^"Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.”

I'm going to cling to the truth and continue to give everything to God and wait for his timing.  Thank you Lord for our precious daughter, for loving her more than we could ever love her and for providing abundantly for her.

Thank you for praying!!!

Still

I know that I wrote in our last blog update that we were discouraged.  It's just been a long few months that has reminded us of how desperately we need Jesus.  God is very clear that life may not be easy.  (John 16:33)  In fact, we are to count it as joy when we have trials.  (James 1:2)  Talking to some of you has given us a renewed strength that we are not alone.  Many of you pray daily and continue to ask us how she is doing...and take such an interest in her because you love our daughter too.  And we are grateful.  Forever grateful that you care for our daughter so deeply.  But more than that, we have an amazing Creator who formed Mia just as she is.  He knew before the world began what her life would look like.  He knew yours too.  And He loves each of us more than we can imagine.  Yes, life is not always pretty.  Sometimes we have to go through rough stuff, but we don't have to go alone.  We have a God who wants to carry us each step of the way. 

This week we have still had seizures.  I'm less discouraged and more hopeful this week.  I trust God completely.  At this point, we just have to daily give it over to Him.  He's blessed us with doctors who are great and who care for Mia.  We continue to pray for wisdom over their direction with medications, but ultimately we trust God for her care. 

Mia Update

So, when I last updated the blog, Mia had been seizure free for a week.  I am sad to report that the seizures still continue.  That was our longest stretch of being seizure free.  We have since increased her medicine again, but it is still not controlling the seizures.  She's had seizures the past three days in a row.  Sometimes we get a break for a few days, but they are still consistently happening. 

One of the medicines she is on (she's on two) takes a few weeks to normalize in your body.  So, we increased this medicine on Friday, but we are going to have to wait a few weeks to see if this new adjustment is working or not. 

At the moment, we are discouraged.  Not hopeless, just discouraged.  We know that God could immediately stop anymore seizures if He so desired.  He is a god of miracles.  But, at the moment, He is allowing this to happen.  We have to trust Him and His plan.  It's just hard to watch your little girl go through something that you have no control over.  And we don't want her to be hurt, so at times it is discouraging. 

When you think of our little girl, will you say a prayer for her.  It means so much that so many of you have faithfully prayed for her and continue to do so.  We are forever grateful for all of you. 

Happy 7 1/2 Mia!

Mia's half birthday was yesterday and of course, the kids were so excited to celebrate!  It's hard to believe she is 7 1/2!  It feels like yesterday she was just a newborn and then we were struggling to reach milestones and now she's a beautiful little girl with so much potential.  Thank you Lord for our miracle. 

Even more cause to celebrate, she has been seizure free for a week.  Her new medicine is working and even though she is a bit tired, we will happily take that instead of seizures.  Here are a few pictures from yesterday.

Happy Easter

We had a rough Easter this year.  Mia ended up having a seizure and falling and banging herself up pretty good.  On top of that, the stomach flu made its rounds through our house.  On the Saturday before Easter, Mia started having multiple seizures during the day.  We ended up talking to her neurologist on the phone and he suggested we up her to the new dosage of meds immediately.  We did that and things have tapered off since then.  Now, because we increased her rather quickly, she's been super tired and out of it at different times during the day.  We are just praying for some normalcy to return to our home this week. 

In spite of all of this, we did have a really nice Easter.  We spent it in Palmdale with my brother and his family.  The kids loved looking for Easter eggs and we had Easter baskets on the table for them when they got home.  They were so excited that the "Easter bunny" had brought them such neat things.  Calvin commented the next day, "How can we tell the Easter bunny thank you?"  I said we could write a note and I bet the Easter bunny would get it somehow. 

What was the most fun for me to watch is how much their knowledge of God and why we really celebrate Easter is growing.  It's really starting to click for them and it's so neat to see them processing all of that.  We talked about how Friday is good for us, but Jesus had to sacrifice so much for us to make it good.  That really made sense to them this year. 

We hope you all had a wonderful Easter!