Friday, October 12, 2007
Mia Danielle
Mia Danielle was born October 12, 2007. She was born at 1:03 pm and weighed 5 pounds 4 ounces. She was 16 3/4 inches long. Mia had a blocked intestine and had surgery the next day to correct it. She was also born without an anal opening, of which she'll have surgery to correct that when she gets a little bigger. In addition, after she was born, we found out that her heart had not formed correctly, she has what is called an AV canal. As a result, 13 days after she was born, she had another surgery, a band placed on her pulmonary artery, because there was too much blood going to her lungs. This band is a temporary fix until she is bigger and will have heart surgery. Later we found out that her right nasal passage was partially blocked, however it did not appear to have any impact on her breathing. Because of all these different concerns, the doctors looked at her eyes, which appear to be just fine, and also her hearing, which is fine. In addition, they have done some genetic testing on her, of which she does not have Down Syndrome and she is not missing any genes. We are awaiting the results from one final test which will tell us if she has an extra gene, the CHARGE gene, of which we continue to pray that the test will be negative. We are so thankful to all who have prayed for her and continue to pray for her. She's been through alot and has done so well because of those prayers, so thank you!
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1 comment:
me again just looking bak over the archives there what you dexcribe is typical charge artrisia of the coanal nasal passages i believe you just descrived i dont have this but a lot of chargers to
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