Wednesday, January 30, 2008
Monday, January 28, 2008
Saturday, January 26, 2008
The twins, Felicity & Charity, are doing well. Here is an excerpt from their mom's email:
Hello Family and Friends –
It’s Nancy – I am home and doing well and wanted to send you all a note to say thank you for your support this week. Thank you for the flowers/balloons, thank you for your prayers, thank you for all of the help in our home and with Trinity and thank you for the meals.
The amount of support has been staggering and we are humbled by the community and family we have around us. Thank you.
Felicity and Charity are doing well. Their doctor told me yesterday that they are doing better than most babies of this age. They are not on a respirator as they are both breathing on their own. They are on a C-PAP machine to force air into the lungs. They are receiving milk from me and are eating well – 2 teaspoons 3X/day at this point. As of this morning, Charity weighs 2 lbs., 2oz and Felicity weighs 2 lbs., 4 oz. They have both gone down from their birth weight, but that is very normal. They appear strong and maybe a bit feisty, the nurses tell me. We visit them each day in the NICU and covet all of your prayers for them to grow to full-term and come home in God’s timing.
Thank you for praying for all of these babies! It means so much to all of us.
Friday, January 25, 2008
Wednesday, January 23, 2008
Today, Brad's mom brought over some genetic history....
I think we have a match! We are greatly relieved that her ears will probably grow up to look normal. (At least as normal as Dad's ears.) AND this leads us to believe that doctor was jumping to conclusions about her ears and having a genetic disease. Thank you God!!
Tuesday, January 22, 2008
We also weighed her when we were there and I was very disappointed to learn that she had not gained any weight from last week. Brad, on the other hand, was just happy that she hadn't lost any weight. So please continue to pray for her feedings and for wisdom on our part and the doctors parts on what the next best step is. One thought is to possibly increase the calories in the formula part of her feeds...we'll see what the doctors say about this.
For those of you praying for the twins, Felicity and Charity, they are doing well. They've got quite a long journey ahead in the NICU, but right now they are breathing well on their own, which is great news. Pray that they wouldn't have any further complications, but would be able to grow strong and healthy.
Friday we go to LA to see the cardiologist, pray for our visit and for travel with Mia.
Monday, January 21, 2008
Thursday, January 17, 2008
Pray though for her feedings...these past couple of days she has only been eating around 440 cc's...I know that she can still gain weight even though the doctors may not feel the same, I know she can because I know that God is not beyond the impossible. She has another pediatrician's appointment next week, and I am praying that she has gained at least 7 ounces, that would be awesome!
Monday, January 14, 2008
Her stoma has been doing much better, so continue to pray that it would heal completely, we are so close! We are just thankful that we are making progress in that area because the skin is such a sensitive issue and it's no fun when it hurts.
Saturday, January 12, 2008
Today Mia is officially 3 months old. It is hard to believe that it has already been 3 months! She continues to be so so with her feedings. Some feedings she does great and others not so well. Lisa is planning on taking her to her pediatrician on Monday just to see if she's gained any weight since last week or not. The intestinal doctors really wanted us to watch her weight for this month to see if she is making any progress. So continue to pray for her feedings. Also continue to pray for her stoma as we continue to try to heal the irritated skin!
Thursday, January 10, 2008
You've heard of my three sons. Well check out my three girls. Aren't they cute? Mia had a very long day today, drinking not as much milk as yesterday. And something upset her tummy and she spit the 6pm feeding all back up when we layed her down to change her. So please continue to pray for her feedings.
Wednesday, January 09, 2008
Please continue to pray for her feedings and pray for us, that we would have energy and strength. Thankfully for Lisa, her mother and Brad's mother have been coming over to help out and let her have a chance to get some naps in during the day. What makes it particularly difficult is that Mia loves to be held and the moment you put her in her crib she's not a happy camper...she would sleep all day in a person's arms if she could. So it has been very helpful for Lisa to have the grandma's around to give her a chance to eat, sleep, etc.
Continue to pray for her stoma also as this can be a slow process in getting healed. We are hopeful though that the new bags and information the stoma nurse gave us will work out.
Tuesday, January 08, 2008
Friday, January 04, 2008
The appointment itself went well. The doctor looked at both of her nasal passages and said that yes, indeed, the right one is blocked. She also looked in her mouth at her submucosal cleft palate, of which she said that she didn't think it was that, rather she thought it was just a high-arched palate. She said we wouldn't know for sure though, until she was a bit bigger. The doctor also told us that she doesn't really have choanal atresia because the blockage is just in the nasal passage, she called it stenosis instead.
At this point, she wants to wait until Mia is a little bit bigger...10 pounds...it seems as though everything hinges on her being 10 pounds. But, the positive is that we actually scheduled a day for the surgery...March 11th...and it looks as though she'll have to stay in the hospital only 1-2 days after the surgery so they can monitor her heart.
After we left, the drive home was really difficult because of all the rain. There was also an accident that slowed traffic near the grapevine...needless to say, we were so thankful to be home...
Our next visit to the doctor is this coming Tuesday. We will be seeing the intestinal doctor regarding her next surgeries there. In the meantime, you can pray for her stoma, the skin around it has been irritated and we've been trying to get that healed with the stuff the ostomy nurse told us about, pray that we would have success.