Thursday, May 26, 2016


We arrived in Colorado on Sunday evening and have completed multiple days of pre-op appointments.  Yesterday they admitted her prior to surgery.  She is having an abdominal surgery and needed to be squeaky clean for it.  As a result, she has had a lot of miralax running through her.  It has made her tummy "sad", her words.  She did throw up once, but seems to be doing well this morning.

Prayers today for:  complication free surgery
                               Minimal to none abdominal adhesions
                               Easy pain management after
                               Uncomplicated recovery

Thank you for praying!  Will try to update more later.

Friday, May 20, 2016

Going Going Going

Mia, Asher, Grandma Cheri and I head out tomorrow to Colorado.  Mia is having a procedure done at the Children's Hospital there to make our toileting process much easier.  We had seen this doctor years ago in Cincinnati and he has since moved to Colorado and we are as a result going there.  He's an expert in the field, to say the least, and with Mia not always being a typical case, we wanted to go and see him.  So, it will be a two day trek to get there and then a week of doctor appointments and surgery and then a two day trek back. 

We, as always, would so appreciate your prayers.  For a safe trip and a complication free surgery. 

Mia's collar bone is doing well and she appears to be healing well.  By the grace of God, she hasn't had anymore falls, but she is still having seizures.  Continue to be praying for her protection, we are so grateful for all of those prayers. 

Will update you after the surgery (which is on Thursday) and let you know how it went. 

Sunday, May 08, 2016

Happy Mother's Day!

It's hard to believe that 8ish years ago, I became a mom.  That doesn't really seem possible to me, yet our little bean is 8 years old!  When you are in the daily moment, it is definitely not easy and can seem like forever, but when you take a step back and look at it, time goes so quickly.  So, I try to enjoy this time, try to remember that it is a journey and not a destination and realize there will be bumps in the road.  Some days that is easier than others, but I am grateful for my munchkins.  They are very unique and so special to me.  I'm so glad that God entrusted them to us. 

Last week, Mia had a seizure and fell down and broke her collar bone.  Sigh.  Big Sigh.  I was in the other room and she'll sometimes giggle loudly after a seizure, so I heard her giggling and knew she had just had one.  I went to check on her and she had fallen in the living room on the carpet, so I thought, ok, this should be ok.  Well, after she came to, I got her up to walk around a bit to make sure everything was ok and she immediately started complaining about her shoulder.  I was hoping it was just bruised, but after a doctor visit and x-ray, it was definitely broken.  She's wearing a figure 8 brace now and will be in it for at least 6 weeks.  I'm going to call an orthopedic doctor in Bakersfield on Monday, just to see about getting her in for him to look at her x-ray and make sure the figure 8 brace is all she needs.  She broke her right collar bone, which is her dominant hand because of the left-sided weakness, her OT encouraged us to get a second opinion just to make sure because she uses this arm/hand for everything. 

If you think about it, please be praying for her healing.  Now we are especially aware when she is up and about because the thought of her falling again and rebreaking it is overwhelming.  Praying for protection and healing for our sweet Mia. 

Tuesday, April 12, 2016

Happy 8.5 Mia!

8 1/2 years!  Time flies!  Seriously.  I can't believe our little girl is 8 1/2 today.  She's not a little girl anymore, she's growing up.  It hurt worse when Brad told me she was half way to 17.  Yikes!  Thankfully we are not there yet.  Today we will do a little celebration for her.  She wanted a lemon cake, so that is what it is.  Here's the sweet girl on her half birthday! 

She is as sweet as she looks.  She's been memorizing verses for Sparky's (Awana club) and one of her verses came from Revelation 21:4, "He will wipe away every tear from their eyes.  There will be no more death or mourning or crying or pain, for the old order of things has passed away."  As she was memorizing, she asked me if we could add in no more seizures too and I told her for sure.  She now will ask to pray after a seizure and always throughout the day whenever we pray for God to take away her seizures.  Patiently, we wait on God's timing for that. 

Thank you for praying for our sweet girl!

Thursday, April 07, 2016

These kids...

They keep me on my toes!  I don't know that anything has changed since the last time I blogged; we are doing well. 

Parenting is definitely not for the weak hearted.  I keep having to remind myself that I'm in it for the marathon, not the sprint.  That seems especially true when your kids need so much discipline.  You think, why haven't they gotten this yet, I have told them a million times that they shouldn't be mean to their brother/sister.  Then I need only look in the mirror at my own reflection and think about how God is constantly working on me, does He ever say the same things about me?  We are born sinful and we are always maturing.  I just have to keep reminding myself how little my kids are and that the time invested now will pay dividends (hopefully) when they are older.  It's a journey, not a destination. 

And they are good kids.  But they are kids and make mistakes.  I guess the hardest part is getting to the heart of the matter, getting them to realize the heart issue about it. 

On a different note, Mia had a seizure at MARE yesterday.  We had finished her riding lesson and were in the barn looking at some things.  I didn't see it happen, but all of a sudden I hear a crash and she is flat on her back on the floor.  But, by the grace of God, she still had her riding helmet on and she fell backwards.  Her head was totally protected and she got away with no bumps, bruises or scrapes at all.  Even through all of the junk of the seizures, I see God's hand on her life in a mighty way.  Over and over again, He protects her.  I'm so grateful.  Thank you Lord!

Saturday, March 26, 2016

Too Many Irons In The Pot

That's what it seems like or that's the excuse I give for not blogging as much.  We just have too much going on.  Keeping up all the daily household stuff + homeschooling + any extra life activities and then I can barely keep up.  I don't know how to make life any simpler because I feel like we live fairly simply. 

I got to get away last weekend with my best friend from high school and still best girl friend today!  She and I went away to celebrate our 40th birthdays!  When I was little and my mom turned 40, I remember what a big deal it, it doesn't seem like such a big birthday.  I guess it is all perspective.  Anyway, we went away to the coast and just relaxed and shopped all weekend.  We stayed in Cambria and there are so many cute stores to peruse around in, it was fun.  Aside from the uninterrupted sleep, I told her the best part was having time to finish a conversation and not be interrupted.  That was nice.  Daddy was a trooper and held down the fort, the kids didn't even miss me...dads do a good job of that. 

A few weeks ago Grandma Cheri bought the kids a play set and this week we have been assembling it.  It will have swings, a slide, a fort on top and monkey bars to crawl across.  The boxes have been in our garage for a bit and the kids have been asking when we would build it and the time has arrived.  Uncle Paul has been a trooper and has been over here doing a bulk of the work.  I feel like I am just here for moral support and to find pieces.  Especially pieces that the kids pick up and move around and shouldn't do that to.  Hopefully it will get finished today. 

Mia is still having seizures.  We have an appointment in April to explore alternative treatment for her (cannabis oil).  Please be praying about that, just wisdom and direction on what to do.  She also has a tentative surgery scheduled in May, but I'm waiting to hear back from doctors regarding that.  It will simplify our bowel management process and so just be praying about that also.  We hate doing surgeries, but know that sometimes it is the best choice and now seems to be the right time for this to happen. 

Calvin and Asher are doing well.  They both had check ups a few days ago and are growing, healthy kids.  Thank you Lord!  Asher has just started to recognize certain letters/sounds that start words.  The other day he said, "pink, that starts with "puh" with is a p."  He was super excited.  I said, "what does Asher start with?"  He said, "aaa with is a."  Just trying to write down and soak up the sweet moments because there are quite a few not so sweet moments too.  :)

Tuesday, February 23, 2016

Birthdays, Birthdays, and more Birthdays

It seems like February is the month of birthdays in our family.  We start the month off with our sweet groundhog baby and then move on to daddy's birthday on Valentine's day.  Then on the 21st of the month is Calvin's 1/2 birthday.  Its been a fun month of birthday celebrations for the family.

Asher had an airplane birthday party.  We invited a few friends and had dinner, cake and presents.  Rather than trying to plan some themed activities, I decided to just let them run around and play.  It worked perfect, they were completely happy to do that. 

Daddy wanted a special "cashew" cheesecake for his birthday.  I tend to get intimidated by recipes and I've been trying my best to push threw that, so I took the challenge.  We have a vitamix and that helped to blend up the cashews until they were creamy.  Surprisingly, the cheesecake itself was easy to make.  It was the raspberry topping that was challenging because of all the boiling and straining of seeds that took place.  But it was delicious and Joy especially approved.  :)

Calvin had no clue that his 1/2 birthday was on the 21st.  I was trying not to make a big deal about it because it was our Missions day at church and I knew we were going to be consumed with stuff to do.  Rather than telling him, I wrote Calvin, 5 1/2 on our chalkboard on the wall.  I guess he was eating his breakfast and noticed the sign and ran to ask Daddy what it was all about.  I then showed him his 1/2 a birthday cake and he was so excited that today was a special day for him.  When we got to church, the activity center was decorated for the missions lunch and there were red balloons on all the tables.  Calvin's eyes grew really wide and he looked up at me and said, "Is all of this for me, Mama?!"  It was rather sweet. 

Anyway, I didn't get enough great pictures of much, but here are a few pictures from Asher's party. 

Tuesday, February 02, 2016

Happy Birthday, Asher!

Dear sweet Asher,

You are 3 today!  What an amazing ride these past 3 years have been with you!!  You are so passionate about so many things, we pray that God can help us to grow your passion for good!

You are a big boy.  You've grown 4 inches this past year.  You are like a little bean stock.  We keep telling Calvin to watch out, you might pass him up one of these days.

Last year we could barely understand a word you said, but your speech has improved so much this year that we can clearly tell what you want and when you want it.  You have two volume levels, quiet and extremely loud.  This year we really want to work on your inside voice.  :)

You love to learn and want to do everything that big brother and big sister do.  One of your favorite toys are Legos and you can't get enough of them.  You are also excellent at puzzles and you are slowly learning how to use a scissors!

Mama is your best friend, except when you are in trouble.  Calvin is your favorite person to play with.  You love music and you love digging in the dirt.  If you could listen to music and dig in the dirt, you would be the happiest boy in the world.

We love you sweet boy!  We can't wait to see how God grows you this year!

Mama and Daddy...Mia and Calvin

Sunday, January 31, 2016


I can't believe today is the last day of January.  It's been a busy month.  I think I need a vacation...when is it spring break?

Mia is still having seizures.  At times it is super discouraging to me because we had a week without seizures in December.  I hate them.  I hate what they do to her and I hate how much they control our life.  Yet, I keep thinking about the verse in Philippians 4:8.  "Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable--if anything is excellent or praiseworthy--think about such things."  It redirects my thoughts and I can only think of Jesus and God and the amazing things that have been done for Mia.  These seizures stink, but God is sovereign.  And when I get discouraged, I have to look to God.  I can't help but be encouraged when I look at how far He has taken her.  Do I want her to have seizures and struggle in life?  Absolutely not.  Do I trust God and His plan?  Absolutely.  I may not get it or understand it, but I trust it. 

Mia and Calvin are both participating in Fun Sports, a 6 week sports program for different ages.  The program runs a few different sports throughout the year and the point is for all kids to get to play, which is what makes it fun.  Calvin threw a fit when we signed him up because he didn't want to do something new.  He displays a lot of the introverted tendencies his mom and dad have.  But he has been having so much fun.  They practice one night a week and then play one game a week.  They are doing basketball right now and I asked him if he wanted to try the next sport and he was hesitant, but then said he would like to try baseball and maybe soccer.  I'm proud of how far he has come.

Mia is also playing basketball and we are realizing how much of a challenge this is on many levels for her.  Mostly, we are concerned about her having a seizure on the court.  It happened once at a game and once at practice.  Because of this, either Brad or myself are with her at all times on the court during practice and games.  Her coach does a great job of including her, but the reality of a team sport is that you don't always get the ball equally.  Since the game play is so quick, she really struggles with that and she's gotten bonked a few times in the face with the ball because she just couldn't keep up.  But she loves it and has loved it from the beginning.  She is quite the opposite of Calvin and is definitely not introverted.  

Asher, of course, was hugely disappointed that he's not old enough to do Fun Sports.  (You have to be at least 4 for basketball.)  The joys of being the littlest, you don't always to get to participate.  :)

Pray for us as we continue to look for answers to help Mia be seizure free.  We meet with her neurologist next week.

Tuesday, January 19, 2016

New Year...when did that happen?

I'm sorry for not blogging more over the holidays.  I wanted to.  But then I didn't want to.  And of course I didn't! 

We had so much fun with our family over the holidays.  The cousins were inseparable.  It was nice to have a few weeks to just enjoy each other.  Then of course, it was January.  We started getting back in the swing of school and we got a surprise visit from Laura, Brad's sister.  So, of course, that was fun and we got some more family time! 

We got a dog and now we don't have a dog.  Tim & Rachel found a stray in our neighborhood right after the new year and we housed him for awhile.  We contemplated keeping him, but realized after a week or so that he wasn't a great fit for us because he loved to eat the kids toys.  We had talked awhile about getting a pet for the kids, but this was not the pet for us.  Thankfully, Tim & Rachel found him a new home with another dog and he is doing fabulous there.  A happy ending for Marley.  

Now, it's almost the end of January, and life just keeps plugging along.  An update on Mia...after she had been seizure free for a week, I tried decreasing one of her meds and within a week, the seizures came back.  We waited a few days just to be sure and we were sure, and then re-upped that medicine again.  Sadly, I chose the medicine that takes 3 weeks to stabalize (because I really thought it wasn't contributing that much and clearly I was wrong) and so now we are almost at the 3 week mark and hoping in the next few days she will be seizure free again.  We have a visit with her neurologist on Thursday and will just discuss the plan for her, but if we can get her seizure free again, I don't want to change anything.  I want to give her a break from the seizures and I think we will just stay where we are medicine wise. 

The kids are doing well in school.  I'm trying to think out of the box for Mia and some of her struggles.  We are caught in the I want and I don't want stage.  Asher so desperately "wants" to do school and everything that the big kids are doing.  Calvin so desperately "doesn't want" to do school and would gladly let Asher take his spot in everything.  The grass is always greener, I suppose. 

Thank you for praying for Mia, please keep praying for her.  We are so grateful for all you faithful prayer warriors!

Saturday, December 26, 2015

Merry Christmas!

We've been having such a fun Christmas season with the kids.  We've been trying to be very purposeful in the activities we choose to do and our first priority is spending time with family.  We've done a lot of spending time with family and that has been great.  The kids are eating up this precious time with Uncle Tim, Aunt Rachel and cousin Joy.  Each day they want to know when is the next time they will get to play together.  My brothers are in town also and so it's been so nice to see Uncle Jarrett, Aunt Dorothy, cousins Sam and Seth, Uncle Jon, Aunt Carmen and cousins Bradley, Andrew, Jordan and Jon-Luke.  Mia has attached herself to Bradley and wants to be just like him, sit by him at the dinner table and do as much as she can with him.  Thankfully he loves kids and does a super job interacting with Mia.  Calvin and Jon-Luke are two peas in a pod and love doing everything together.  Asher fits in well too and everyone is just having so much fun together.  It's a very sweet time and we are just savoring every minute.

We added in a third medicine to Mia's meds a few weeks ago and it appears to be what she needed to stop her seizures.  She's been seizure free for a week and we are so thankful.  It's been almost a year since her seizures started and she has rarely gone more than a day without a seizure, so to be without for a week...the feeling of immense gratitude is indescribable.  I tear up just writing about it because it's been such a long year for her and for us.  God couldn't have picked a better Christmas present for us than this.  Praise God!!!  And yet, what we've gone through has been a difficult year, nothing can compare to the sacrifice that Jesus made on the cross for us.  And while we've been blessed with a seizure free Christmas, the ultimate gift is Jesus himself.  For that, we are eternally grateful and it gives us the hope and ability to keep running the race for Him.

So as always, thank you for praying for Mia.  We are so grateful and we wish you and your family, a very Merry Christmas from our house to yours!

Thursday, December 10, 2015

And Now It's December!

Time flies when...well, it just flies these days.  I blink and it feels like it's a month later.  We continue to plug along.  We've been spending quite a bit of time with family and doing fun, festive things this Christmas season.  We haven't been swept away with too much activity, it seems to be just the right pace for our family. 

We decorated our Christmas tree and that was so much fun for the kids.  This is the first year I haven't had to barricade the tree off in some sort of way to keep little hands from the ornaments.  Asher has done a really good job of not touching too many things.  He has broken a few ornaments already, but I figure that is par for the course for an almost, but not quite 3 year old. 

We have been doing some different advent calendars, one of which is the Lego advent calendar.  It's been fun and exciting to find what's hiding behind each door.  Calvin did peek behind door #24 and it is the Santa Clause.  I told him, that's no fun to peek, you have to wait for the day to come to look and see.  He then proceeded to tell me it is fun to peek and he's still excited knowing that Santa is behind door #24.  I think he gets that from me.  I like knowing the end of things (books and movies) before reading/seeing it, knowing how it ends removes the anxiety and it is still exciting for me to read the book or watch the movie. 

We also have been doing a daily Jesse Tree advent thingy madingy.  I saw someone else do it and decided to copy theirs.  Each day they hang up an ornament that corresponds to a bible devotional.  It tracks the lineage of Jesus, hence the name Jesse Tree (out of the root of Jesse...).  The kids have been enjoying that too. 

Mia is still having seizures.  Please continue to pray for her and us as we navigate our next decisions.  We added in a third medicine today for her and should know in a few weeks if that is working or not.  We pray it will!  Thank you for always praying for her!

Thursday, November 19, 2015

Uh, where have I been?

Well, someone how or another I have almost missed November.  I did have well meaning thoughts to actually post an update on here awhile ago, but we got busy again. 

This week, I've been to LA twice already and am happy to not go back until next year for any doctor appointments for Mia.  We saw her orthopaedist on Tuesday.  Her OT is concerned because her left foot has been turning out more recently and she seems to be stretching her knee muscle/ligament the wrong way.  Note to parents out there:  Don't let your kids sit with their legs in the shape of a W.  That's when their knees are in front, they are sitting on their bottom and their legs are back by their hips.  Criss Cross Applesauce is the way they should always sit.  We'd been lenient with her and hopefully it hasn't caused too much damage.  Now we are very strict again.  Bottom line is that our first step in addressing the issue is to get an insert for her shoe and hopefully that positions her foot in the correct alignment.  After that, there are some casting options and surgery options, but we'd rather not go that route. 

After that we had a visit to her cardiologist on Wednesday.  It was time for her annual echo of her heart.  She's been doing this for awhile and there hasn't been any change, really since when the surgery was done at a little over one year of age.  In fact, 7 Thanksgivings ago to be exact.  He basically told us that her heart looks just like a heart that was born normal.  He doesn't anticipate any changes ever, but they still like to monitor them, so he felt like stretching her appointment out to every 2 years was good now.  I imagine as she gets older and everything stays stable, that appointment will get stretched out even further.  Praise God for gifting people with the ability to take a heart that can not function on its own and surgically help it to function as though it was born without any problems!  We rely so much on science, but ultimately, we have to remember that God is the one who has gifted people with the ability to learn and perform these operations.  Ultimately, God gets all the glory!  Amen. 

Today we are braving the theater with all of our kids.  Calvin has been the only one to go to a movie in the theater so far and he didn't make it through the whole Lego movie before being scared and leaving.  Today we are going to attempt the Peanuts movie.  There shouldn't be anything scary and I think they will like it.  As a special treat, we get to go with their cousin Joy!  The kids just love spending time together and we are grateful to have them here, even though the circumstances getting them here wasn't their first choice. 

The kids are getting excited about Thanksgiving.  It should be a fun week for them next week. 

Mia is still having seizures daily.  Please be in prayer for us about wisdom for the next step.  And please continue to pray that God would miraculously stop them. 

Friday, October 30, 2015

Happy Halloween!

We have been having a great October.  The kids and I have done some fun halloween crafts and we've attended some fun events.  We've hit the pumpkin patch and a harvest festival at a local church.  The kids have been loving the extra activities.  Last night we carved our pumpkin and tonight we watched Curious George:  A Halloween Boo Fest.  They can't wait until tomorrow. 

We checked out a book from our church library, The Pumpkin Gospel.  It relates carving a pumpkin to our salvation with Jesus.  Our sin is the ooey gooey stuff inside that needs to get scooped out.  Then God's light can shine out through your pumpkin.  We read it a few weeks ago and the kids really enjoyed it...when we were carving our pumpkin they got excited and said, "this is just like the pumpkin gospel!"  I love when they make connections like that. 

Mia is still having her seizures.  We've increased her medicine again and we have one more increase that we can do.  If not, her neurologist wants to add in a third medicine.  We hope and pray that this is enough and her seizures stop.  Thank you for always praying with us!

Here are some pics of the kiddos. 

Tuesday, October 13, 2015

And the cake...

This year Mia wanted a Komodo cake.  Komodo is a character from the cartoon Animal Mechanicals.  He is a mechanical dragon.  She loves that show because there are 5 characters and she has named each one of her family members after them.  She, of course, is Komodo.  I am Unicorn, Daddy is Rex, Calvin is Sasquatch and Asher is Mouse. 

Usually when one of them gets an idea for a cake, I immediately pinterest it to get creative "easy" ideas.  I am not the Cake Boss.  But, I do have a lot of fun creating the best possible cake I can do for them.  And they are super easy to please, so that makes my job easier.  When I searched for Komodo cakes, there were none.  That made my job a bit more difficult.  Here are the characters from the show, Komodo is the red one:

Now, there was no way that I was going to make a full size Komodo.  After thinking about it for awhile, I thought that maybe I could recreate the head of Komodo.  What sealed the deal was when I was shopping at Hobby Lobby and I found a mold to make eyeglasses from those candy melts, I immediately thought that would be perfect on this cake.  And I made a bunch more for the kids for their party favors.  Here is what our cake looked like:

The kids had fun, we played lots of pumpkin games...pumpkin bowling, pumpkin races...and they got to make candy apples.  It was a fun party!

Monday, October 12, 2015

Happy 8th Birthday Mia!

Sweet Pea...or should we call you Komodo,

Happy Birthday!  It's hard to believe it has already been 8 years since you let out your first cries!  Where has time gone?  You are an adorable 8 year old, full of life, ready to conquer anything.

We love your imagination.  Your name and person changes daily.  Some days you are a red dragon with blue glasses (Komodo), other days you are a blue dog named Chase.  Some days you are a pirate cat that lives in the ocean named Kwasii.  Some days it is just hard to keep track.

This year you are in second grade and doing so well.  You love to read and learn.  This year we have started Spanish because you can't get enough of it.  When asked how old you are going to be on your birthday, you usually always respond, "ocho".  It makes us smile.

You are growing taller and getting bigger.  This year you gained another 2 inches.  We do just a few therapies with you now, what a change from a few years ago.  You still ride horses at MARE and you love that.

This year our prayer is for your seizures to stop.  We know that God can do this in an instant, if He chooses, but right now, we don't understand why, but He isn't choosing that.  We are going to trust Him for his timing.  But we want that more than anything.  You've had some pretty bad falls because of them and we'd like that to never happen again.  You are a brave girl though and keep fighting daily through them.

We love you so much sweet baby girl.  We are so grateful that God has entrusted us with you.

Love you to the moon and back,
Mama and Daddy and brothers

Thursday, October 08, 2015

Who Wore It Better?

Nana saved some clothes of Brad's when he was little.  I got Calvin to try it on for fun the other night.  Now we have to ask, who wore it better?  (The picture of Mia is a few years ago when she put it on and of course, Asher had to participate...he actually liked wearing the was painful for Calvin because it has buttons.)

Monday, September 28, 2015

An Update

Let's just say that September has gotten away from me.  Between my grandmother's funeral and the start of a new MOPS year (I'm one of the coordinators), I've been busy.  I love my MOPS group, this is my third year coordinating and while I am a veteran and tend not to let the stress overwhelm me, there is just always a long list of things to do in the beginning.  Now that the dust has settled, it should calm down. 

We are doing great.  Mia is still having seizures daily.  We had a brief stretch of 4 days without any seizures, but then it was back to the usual.  I'm waiting to hear back from her doctor on whether or not we should add a third medicine into the mix.  She has maxed out both of her current medicines, so those aren't really an option.  Of course, if she were to gain a significant amount of weight quickly, that would change things, but our 40 pounder (yes, she's only 40 pounds!) has a hard time gaining weight.  We are just thankful that she continues to grow at her own pace. 

We've gotten into a nice routine with school.  The kids love doing school together and I've noticed some improvements with Mia over the past few weeks.  She struggles with basic addition facts, but the more we practice, the better she is doing.  It is a daily struggle though.  We try to do math first just because that is when I am most patient and it's the least favorite task. 

Keep on praying for a resolution to the seizures.  She's been a trooper through all of this and our hope is that she'd be seizure free soon.

Wednesday, September 16, 2015


It's been a crazy few weeks at our house.  My grandma passed away unexpectedly on September 2nd.  She had a lived a full life and was ready to meet Jesus, we just weren't ready for it to be her time yet.  But, we are grateful that she is rejoicing in heaven and has her new body with no suffering and no pain.  We look forward to the day when we will see her again.  Asher and I flew back for the funeral.  It was several very nice days with family that I don't get to see very often.  Asher loved all the attention and did super well with all the changes. 

On a funny note, during my Grandma's service, Asher was well ready for a nap and just being difficult (believe it, it happens).  He was on the floor in the church and sat up and bumped his head on the pew hymnal box.  He immediately starts crying at what seems to me to be the loudest possible volume available to him.  Anyway, I jump up and start walking out with him and half way to the back of the church he screams as loud as he can, "I need a bandaid!"  Humorous to everyone there, not so humorous to me.  The joys of being 2?

Last week we were adjusting back and had a visit to Mia's neurologist.  Because neither of the grandmas were available to go with me, Brad took the day off and came along.  It was good because he rarely gets to her doctor appointments and its nice for him to be there.  Her neurologist has bumped her up to the full dose on both medicines, hoping that this will control the seizures.  He is hesitant to start a third medicine, but not completely against it.  We will touch base with him in a few weeks to determine more of where we go from here and see how she's doing at the full dosage of her current medicines.  As of today, she is still having seizures daily, but we will give it a bit more time before a decision is made. 

There are a few other options for her.  Over the past few years, cannabis oil has started to make headway in the area of epilepsy.  It is still not FDA approved here, however, there are some clinical trials being of which is in San Francisco.  Her neurologist mentioned that they are planning some of their own clinical trials in the future and that she would definitely be a candidate for that if she is still having seizures when they start those trials. 

The other option for her is a Vagus Nerve Stimulator.  It's an implant that is connected to a nerve and sends pulses to your brain to regulate it.  He didn't have a lot of negative concerns about it, but since it is rather permanent and another surgery, we are going to do some of our own research to see if that is something we might want to try.  It sounds hopeful for some, but like all things, it doesn't have results for others. 

Yesterday we went to the eye doctor and Asher's eyes are doing well.  Calvin, however, needs school glasses.  He has a small correction that she'd like to do, but not glasses for the whole day.  He excitedly picked out a pair that are blue and orange and we should get those in a few weeks.  Mia got her new glasses yesterday, so we'll have to get a picture of the kiddos in their glasses to show you all. 

Yesterday was also a big day for Asher.  We moved all three kids into the same bedroom.  They've been begging to sleep together for awhile, so we thought the time was right.  We are hoping that this will make Asher come visit us less in the middle of the night...we can always hope.  They all tucked in and went to sleep quietly and quickly.  Unfortunately, Asher had a small fever and woke up and ended in our with kids, right.  :)

Thursday, August 27, 2015

Squid Cake, Oh My!

Calvin had a fun birthday party.  He had a few friends over for his Octonaut themed party.  The invitations said to come help rescue the giant squid.  Calvin can change his mind frequently for what he wants for a cake, but when he settled on a squid a few weeks out from the birthday party, I told him there was no changing it.  He was super happy with his cake and party.

The cake!

 Creature Report - Learning about giant squids

 Bday boy and daddy.

Rescuing creatures from a bucket of sensory!
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