Sunday, June 28, 2015

What A Week!

We had a crazy, busy week with VBS at our church.  The kids had a blast.  Little Asher who has been crying every time we drop him off in the 2 year old class went from not wanting to go to crying when I picked him up and not wanting to leave.  His teacher is one of those people who just has a gift for little kids and Asher loved him.  It was neat to see Asher enjoy it so much.  Calvin was in with his usual Sunday school teacher and that worked great for him.  He had so much fun this week that on Friday night when he was saying prayers before bed, he prayed, "thank you God for sunday school."  Which is so not him, he usually tells us how much he doesn't want to go to church.  And Mia, well, we bumped her into the 2nd grade class because my mom, Grandma Cheri, was teaching it.  So, that was a great fit for her and she also had such a fun week.  I, of course, am exhausted.  I need a vacation!  Ha!  And so we are, we are heading to the beach and will be camping with my brother's family for the next few days.  The kids are excited.  This will be the first time in a tent for them and I don't know how much sleep we will really get, but we are looking forward to cooler weather and time away.  :)  Mia continues to have seizures daily, but we do feel like they are not as strong and we are hopeful that they will soon no longer be a daily occurrence.  Thank you, as always, for praying!

Mr. Bob - Last night, we asked Calvin to pray at bed again...and he ran through his typical thank you's...Thank you for Mom, Dad, Mia, Asher, Grandma...etc...and at the very end he said, "thank you for Mr. Bob."  We love your family and are so grateful how you love on our kids!

Sunday, June 21, 2015

Happy Father's Day!

Happy Father's Day Daddy!  We love you!

Today our pastor gave such a good sermon at church.  He was teaching about Philippians 4:1-13 where we are commanded to not be anxious about anything, but in everything to give thanks to God.  We can be at peace about really difficult situations because God is sovereign and His plan is best.  I kept thinking about Mia and all that she's going through/been through.  Brad and I can tell you that we have clearly felt the peace of God during different times of Mia's life.  The first when she was 1 day old and immediately shipped off to surgery.  During those 4 or 5 hours that she was in surgery, we were completely at peace, overwhelmed by it.  There was nothing to be anxious about because God was in control.  And He still is.  He always will be.  It's been a rough few months with all of the seizures that she's going through.  But we don't have to be anxious about it, we can walk through it KNOWING that God is in control and His plan is far superior to ours.  We don't have to understand why, we just have to trust Him.  And we do.  Sure, we don't like to see her have seizures, but ultimately, we know that when she is seizure free it will be because of God and His timing, His plan.  And if He chooses to allow the seizures to continue, that doesn't minimize Him.  We are just going to trust His plan and His time.  He's walked her through so much, He'll walk her through this.  As always, thank you for continuing to pray!

Friday, June 19, 2015

Mia Update

Mia has been at full dosage of her new drug since last Thursday.  When I say full dosage, I don't mean the maximum dosage possible for her, I just mean the amount that the doctor wanted us to get to in order to see if that would stop her seizures.  This drug takes about 5 days to reach steady state in her blood and so it's been a week since we got to that dosage and she's still having seizures.  So, I spoke with her neurologist and the plan is to slowly increase one of her drugs and just monitor the results from that.  We can tweak as we go, but hopefully we should be able to get to a point where she is seizure free.  So, I get to keep making notes as we change things and monitoring her seizures and we'll just go from here.  Thank you for all that are continuing to pray for her!  She had a pretty bad seizure on Wednesday while my mom was babysitting her.  It lasted quite a bit longer than her usual seizures, so that was scary for my mom and concerning for us.  But we continue to trust in the Lord and lean on Him as we work through this time!

Next week is VBS for us.  It will be a very busy week for the kids and me too.  I volunteered to co-coordinate crafts for the elementary kids and well, let's just say there's a lot on the plate right now.  I will be thankful when the week is done.  Pray for us, that the kiddos would stay healthy, that everyone would have fun and that Asher would do well with the little kids.  Pray also for our neighbor, she approached me today and told me she signed her daughter and niece up for VBS.  They are definitely unbelievers and I'm so excited for their kids to be at VBS for the week.  Pray for seeds planted with those kids...with all the kids there!

Monday, June 15, 2015

Sweet Moments

The kiddos are getting bigger and I'm trying to cherish all the sweet moments.  I usually end up waking Asher from his nap because I don't want him to sleep super long because he won't go to sleep at night.  Yesterday when I went in to wake him up he was groggy as usual and so I laid down on his bed and started to talk with him.  I was just talking so he wouldn't fall back asleep.  We talked about Sunday school and the lesson from that morning, and then we talked quite a bit about his snack at Sunday school which had been cookies.  He mentioned that someone put their cookies on the floor and looked at me and said, "that's not good mommy."  And then after we talked some more he looked at me and said, "I like talking in bed mommy."  What a cutie, I can't get enough of his sweet words. 

Calvin is growing up right before our eyes and we've seen such a tremendous growth in maturity over the past few months.  His brain is always working and he is always asking questions.  A lot of times they are about God and how He works.  Like, "Did God make everything?"  "Did God make that house?"  Or the other day he was asking me, "Is God everywhere?"  "Is God in our fridge?"  "Is God in our TV?"  I don't think I was that inquisitive as a 4, almost 5 year old.  And of course he absolutely has a fear of death and will tell me all the time that he doesn't want to die, but this morning he said, "Mama, I don't want you to go to heaven."  Of which, I responded, "Why would you not want me to go to heaven?"  And he then said, "I don't want you to go to heaven before me."  Sweet sweet boy. 

Mia is doing well, we still have been having seizures.  We had two yesterday, but we are officially at our new dosage as of last Thursday, so I'm hoping that when everything settles and is in full effect in her system, we won't see any seizures anymore.  We so appreciate all of you praying for her, we are so grateful for that and we trust that God will continue to see her through this...and us! 

Wednesday, June 10, 2015

Changing Meds

So we are still in the middle of changing meds for Mia.  Yesterday she had a pretty bad seizure with no advance warning and ended up falling in our kitchen.  It was really scary because she could have injured herself pretty bad from the fall.  By the grace of God, she did not.  Today I ordered her a helmet.  When Brad brought it up last night (getting her a helmet), my heart dropped.  I don't want her to wear a helmet.  But the more and more I thought about it and processed it, the more sense it made.  At least until we sort out her meds and know that they are working fully and she isn't having anymore seizures, then she probably should be in a helmet.  She doesn't always let us know when they are happening and she is not good at getting on the floor when she feels one coming on...so for her safety, she should be in a helmet.  It won't be pretty, but it will be safer.  Please, continue to pray that her seizures would stop. 

Tomorrow is our last swim lesson and I'm so pleased with Mia and Calvin's progress.  They both have improved quite a bit over the last two weeks.  They cannot swim yet, but I see marked improvement from both of them.  Calvin will probably get swimming quicker...because his coordination is better, but Mia has a lot less fear in the water than him.  We are going to do it again...the lessons...after VBS and our small vacations we have planned. 

Right now we are having a wonderful summer thunderstorm!  I love the smell of the rain and listening to it fall.  It reminds me of God's mercies and His creation.  Thank you Lord for the rain!

Thursday, June 04, 2015

Back In The Swing Of Things?

For a long while I was updating our blog almost daily.  If it went more than two days I felt bad.  Then we added another child and I probably updated twice a week...well, with the addition of kid number three, I feel like I have almost fallen off the blog wagon.  I'm just a busy mom and when I do sit down for a break, writing on the blog is not my first choice.  But...I do love skimming back over the years and seeing the growth of all the kids.  This really has become my baby book for them.  And I started printing out a hard copy of the blog a few years ago, but never got around to finishing it.  I want to do that.  I want the kids to be able to read through it and get a little glimpse into their childhood.  Which makes me want to write more.  Ha, we'll see how long it lasts!

Yesterday was a bad day for seizures with Mia.  She had 4.  Our most significant number since we started getting them at the beginning of the year.  Immediately my brain starts to generate a list of what if's...what if this caused it, what if that...I guess it's just par for the course with a child with special needs. 

So, please continue to pray for Mia.  Pray that she adjusts quickly to the new medicine and that it fits her needs. 

Calvin is especially good with her.  If she is with him and having a seizure, he immediately comes and gets us.  She had one at the lunch table yesterday and we didn't hear her telling us that she felt like falling, but Calvin did and immediately shouted out to us, "Mia feels like falling."  We were able to quickly be beside her to make sure she didn't fall and be with her during the seizure.  He's a very compassionate brother and he loves his sister dearly. 

Tuesday, June 02, 2015

Summer!

Summer has officially arrived.  At least for us it has. 

On Friday we had a bit of a scare.  I was getting Mia's evening dose of medicine ready and I noticed we were nearly out, so I grabbed the box with the other bottle in it only to realize that there was no other bottle.  We had already grabbed that bottle and we didn't have any more medicine for her.  My heart panicked.  I had enough for her evening dose, but not enough for her morning dose.  By the grace of God, Costco was open (we get our meds there) and the pharmacy was able to add her order to the list, however, they weren't for certain it would arrive the next morning.  It showed the medicine was available, but they said if someone else placed an order for it before them, then the medicine could go there instead.  We immediately asked our friends and family to pray.  It was a rough night and morning for me, but by the grace of God our medicine made it to Costco in the morning.  She got her dose a bit late, but thankfully she got it.  I'm such a planner and I'm usually ahead of the game in reordering medicine because I don't want to be in a position where we don't have any, but this is the first time we get two bottles in a prescription and so now I've taken both bottles and put them where her meds are and when I only have one bottle left, I will know it's time to reorder. 

We started Mia's new medicine and she is still having seizures.  We anticipate that happening for a bit while we are weaning her off one medicine and increasing the next medicine.  But, please, as you remember her, keep praying that she would be seizure free soon.

Mia and Calvin started swim lessons this week.  We are taking them to a gal's house who does private lessons.  They are having a blast.  They both love being in the water and aside from sticking their faces in, they are working hard at everything else.  Today she had Calvin floating on his back by himself.  He didn't know it, but he was doing it. 

Mia is now 40 pounds!  Woohoo!  I almost can't believe it.  40 pounds is a big deal because now she could technically ride in a booster seat instead of her forward facing car seat.  We will keep her in the car seat as long as we can because it is safer, but it's nice to know there are some options.  And she's getting bigger!  It took 7 1/2 years, but we've made it to 40 pounds!  That's a big deal.  :)

We are winding down with school, but will continue to work on things over the summer.  Just not the same intensity as the school year.  But overall, the kids do better when we have a bit more structure in the day, so continuing on with some school stuff will be great on multiple levels.  Mia did super well this year.  She still has some struggles, but overall, she's did a great job of keeping up with all of her goals.  Her favorite subject was always science.  She studied stages of life, plants and animals, the human body and we ended with bugs.  The kids especially liked growing butterflies and ladybugs...I mean ladybird beetles.  I can't figure out why we don't use their formal name.  ;)


Friday, May 29, 2015

Neurology visit

We were in LA yesterday for Mia's neurology visit.  She has still been having seizures so at this point we are going to take her off the first drug she has been on for almost 7 years now.  Now we will be adding in a new drug instead...it is geared towards seizures that involve falling.  We are hopeful that this will address it, but like always, the increase will be gradual so we might not notice the change for a bit.

As always we keep praying for wisdom for her doctors and healing from God.  Thank you for praying for our sweet girl!

Thursday, May 21, 2015

Ups and Downs

Last Friday Mia had three seizures.  Up until then, she had been having 1 a day for the most part.  So, I emailed her neurologist and he said that if things didn't change by our appointment next week Thursday, he was going to have to rethink his entire strategy for her seizures.  After that, we suddenly had a long stretch without seizures.  I began to think, hey, maybe this is it and the medicine has finally taken full effect in her body.  But then, yesterday afternoon she had a seizure and today we have had two. 

It is just such a battle.  I have so many questions swirling in my head.  And it is somewhat of a guessing game towards figuring out what medicine is going to help.  And unfortunately, I've read too much information on the internet and in the back of my mind, I wonder...what if nothing helps? 

When I start to feel that way, I stop, take a deep breath, and then give it to God.  It doesn't matter what science or the world says.  If God says yes, then God says yes.  And I have to continue to trust.  He's provided so many miracles for her already.  I'm so glad I'm on His side. 

Satan tries to defeat us.  He will use every tactic to discourage us and bring us down.  And God never promised that life on earth would be easy.  But God does promise to never leave us. Deuteronomy 31:6 says, "Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.”

I'm going to cling to the truth and continue to give everything to God and wait for his timing.  Thank you Lord for our precious daughter, for loving her more than we could ever love her and for providing abundantly for her.

Thank you for praying!!!

Wednesday, May 13, 2015

Still

I know that I wrote in our last blog update that we were discouraged.  It's just been a long few months that has reminded us of how desperately we need Jesus.  God is very clear that life may not be easy.  (John 16:33)  In fact, we are to count it as joy when we have trials.  (James 1:2)  Talking to some of you has given us a renewed strength that we are not alone.  Many of you pray daily and continue to ask us how she is doing...and take such an interest in her because you love our daughter too.  And we are grateful.  Forever grateful that you care for our daughter so deeply.  But more than that, we have an amazing Creator who formed Mia just as she is.  He knew before the world began what her life would look like.  He knew yours too.  And He loves each of us more than we can imagine.  Yes, life is not always pretty.  Sometimes we have to go through rough stuff, but we don't have to go alone.  We have a God who wants to carry us each step of the way. 

This week we have still had seizures.  I'm less discouraged and more hopeful this week.  I trust God completely.  At this point, we just have to daily give it over to Him.  He's blessed us with doctors who are great and who care for Mia.  We continue to pray for wisdom over their direction with medications, but ultimately we trust God for her care. 

Wednesday, May 06, 2015

Mia Update

So, when I last updated the blog, Mia had been seizure free for a week.  I am sad to report that the seizures still continue.  That was our longest stretch of being seizure free.  We have since increased her medicine again, but it is still not controlling the seizures.  She's had seizures the past three days in a row.  Sometimes we get a break for a few days, but they are still consistently happening. 

One of the medicines she is on (she's on two) takes a few weeks to normalize in your body.  So, we increased this medicine on Friday, but we are going to have to wait a few weeks to see if this new adjustment is working or not. 

At the moment, we are discouraged.  Not hopeless, just discouraged.  We know that God could immediately stop anymore seizures if He so desired.  He is a god of miracles.  But, at the moment, He is allowing this to happen.  We have to trust Him and His plan.  It's just hard to watch your little girl go through something that you have no control over.  And we don't want her to be hurt, so at times it is discouraging. 

When you think of our little girl, will you say a prayer for her.  It means so much that so many of you have faithfully prayed for her and continue to do so.  We are forever grateful for all of you. 

Monday, April 13, 2015

Happy 7 1/2 Mia!

Mia's half birthday was yesterday and of course, the kids were so excited to celebrate!  It's hard to believe she is 7 1/2!  It feels like yesterday she was just a newborn and then we were struggling to reach milestones and now she's a beautiful little girl with so much potential.  Thank you Lord for our miracle. 

Even more cause to celebrate, she has been seizure free for a week.  Her new medicine is working and even though she is a bit tired, we will happily take that instead of seizures.  Here are a few pictures from yesterday.




Tuesday, April 07, 2015

Happy Easter

We had a rough Easter this year.  Mia ended up having a seizure and falling and banging herself up pretty good.  On top of that, the stomach flu made its rounds through our house.  On the Saturday before Easter, Mia started having multiple seizures during the day.  We ended up talking to her neurologist on the phone and he suggested we up her to the new dosage of meds immediately.  We did that and things have tapered off since then.  Now, because we increased her rather quickly, she's been super tired and out of it at different times during the day.  We are just praying for some normalcy to return to our home this week. 

In spite of all of this, we did have a really nice Easter.  We spent it in Palmdale with my brother and his family.  The kids loved looking for Easter eggs and we had Easter baskets on the table for them when they got home.  They were so excited that the "Easter bunny" had brought them such neat things.  Calvin commented the next day, "How can we tell the Easter bunny thank you?"  I said we could write a note and I bet the Easter bunny would get it somehow. 

What was the most fun for me to watch is how much their knowledge of God and why we really celebrate Easter is growing.  It's really starting to click for them and it's so neat to see them processing all of that.  We talked about how Friday is good for us, but Jesus had to sacrifice so much for us to make it good.  That really made sense to them this year. 

We hope you all had a wonderful Easter!

Monday, March 30, 2015

Melting Mama's Heart

A sweet moment just happened with me and my baby boy.  Well, he's not a baby anymore, but he'll always be my baby boy.  I was lying down with him and singing songs to him right before nap time.  Our usual routine.  He leaned over and kissed me, and then said, "I love you."  And just to make sure I got it, he did it three more times.  Talk about melting a Mama's heart.  I tell him those words every day, today is the first day he has ever said them back to me.  So sweet!

Mia is still having seizures.  We've added in a second medicine, but because we have to gradually introduce it to her, we are not at full dosage for the new medicine yet.  It will be at least another 10 days before we reach the full dosage, so it's tough for us to watch her to continue to have seizures and not be able to do anything about it.  Thank you for continuing to think of her and pray for her, we so appreciate it! 

Saturday, March 21, 2015

A Much Needed Update!

It's been a month!  I think that is the longest stretch I've gone without writing.  You see, things have gotten crazy and I got sick.  Not a really good combination, but when mom's sick, everything gets put on the back burner. 

Recently, Mia started having seizures daily, so we ended up going down to UCLA last week and doing another overnight EEG.  This time they did capture a seizure on video and connected to the electrodes.  Praise God!  And so they upped her medicine and we were hoping that would be the answer.  It took a little while to adjust to the new dosage and this past Wednesday, Thursday and Friday we were finally seizure free!  I was so excited because I thought that meant it was finally working, but then today, Saturday, she has had 3 seizures.  Sigh.

So, we called down to UCLA and spoke with the neurologist team and we are going to up her dosage some more.  Please be praying with us that this is what she needs to be seizure free.  Our God is amazing and we want to trust Him and His plan for our little girl. 

Tuesday, February 24, 2015

Happy Half Birthday Calvin!

Calvin turned 4 1/2 on Feb 21st.  It is a Sturm tradition to celebrate 1/2 birthdays...you get 1/2 a cake and 1/2 the birthday song sung to you.  You also get 1 present and your age in dollars ($4.50 for Calvin).  Brad has been encouraging me for awhile to do this for our kids, but I kept forgetting...until I put it on the calendar.  It is amazing what you can remember on the calendar.  So, we started the tradition this year with the kids.

They were excited, the idea of a 1/2 birthday is different for them.  Calvin made the comment, "so tomorrow I turn 5".  Not quite, not quite.  But anything for celebration is fun! 









Yeah, I can't tell if that cake was good or not.  What do you think?

Tuesday, February 03, 2015

Construction Party!

We celebrated Asher's birthday last night.  The kids were so excited for the big day, they had been counting down to it from last week.  It was a construction party for the toughest worker.  They all loved it.










Monday, February 02, 2015

Happy 2nd Birthday, Asher!



Dearest Asher,

It's your special birthday!  You know, the birthday where your year is the same day you were born.  Happy 2nd birthday big boy!

It's been such a joy to watch you grow this past year.  You've matured by leaps and bounds.  Literally.  You love to leap and bound off any piece of furniture, regardless the height or what's below.  Daddy often comes home and asks where your new scrape or bruise comes from and we don't always have an answer.  The scrapes and bruises do not slow you down at all, they're just a formality to you.

One of your nicknames is Asher the Destroyer.  It is fitting, if there is a tall tower or a nicely organized playroom, it is your job to destroy that.  Happily.  Which, is probably very typical of a kid your age.  It can be rather frustrating for your older siblings, but thankfully they know you are in the toddler stage and they give you an extra measure of grace.  Secretly, they are probably hoping this stage will pass quickly.

You love to eat almost anything, but your absolute favorite food is ranch dip, if we can call that a food.  If there is dip, you are in heaven.  And you don't just dip fries or chicken, you dip everything...apples, crackers, even cookies have been dipped in ranch dressing.  Hey, maybe you are on to something new here?  One thing that delights us is how much you love your vegetables still.  If it is green, it's a hit!  Woohoo!!!

You are quickly progressing in speech.  You still struggle with certain letters, like c and l, so when you say Calvin, it comes out as Talvin.  And a cat is a "tat".  It's fun to watch you grow and learn.  You love to play with markers, crayons, glue and stickers.  Art is one of your favorite activities.  You also love to play with legos and puzzles, and of course trucks!  You can't get enough big trucks.

You are still a mama's boy and will accept no substitute sometimes.  Mama loves to sing you to sleep at naptime and nighttime.  Your favorite songs are Jingle Bells, Twinkle Twinkle Little Star, You Are My Sunshine and Winnie the Pooh.  Usually after multiple rounds of each, you eventually close your eyes into a peaceful sleep.

We love you dearest son.  We are so grateful that God placed you in our family and we get to watch you grow and mature.  One of our favorite things is listening to you pray.  We can't always figure out what you are saying, but at the end you give us a nice, loud Amen.

Thank you Lord for this precious son!

Love, Always and Forever,
Mama, Daddy, Mia & Calvin

Wednesday, January 28, 2015

Home

We are home safe from our trip to UCLA.  Everything went great, thank you Lord!

Yesterday we got a call in the morning that said we needed to be at UCLA at 1:30.  So, Nana came over and watched the boys while Mia and I headed down to LA.  I had already talked to Mia about what was going to happen and she seemed totally ok with everything, which surprised me a bit since she does not like doctors or hospitals.  She was just very excited to be doing a girl trip with her Mama and I don't think she really cared where we were going as long as I was with her.  I explained that they were going to give her funny hair extensions and she thought that was great. 

When we walked into the hospital, I was surprised by the flood of emotions that overwhelmed me.  Even though I take Mia to UCLA every so often for doctor visits, we never visit the hospital, so I don't actively think about being there and everything surgically that has happened to Mia.  Anyway, walking into the hospital just brought back such raw emotions.  I had to take a few deep breaths and keep walking because part of me wanted to turn around and not even be there. 

I look at Mia and know how far the Lord has carried her.  She truly is a miracle.  And I can't take back what happened to her and I know without a doubt that God is using this for His glory.  And it is amazing what He has done, how He has healed her beyond what doctors could ever imagine or believe.  Yet, I would take it back in an instant, I would go back in time and do it all over again if that didn't have to happen to her.  No one wants their child to struggle or go through painful times.  But since I can't do that, I am so grateful.  Grateful for a sovereign God who has used Mia's tragedy for His glory. 

She of course was clueless to all of this, I love the innocence of this age.  We got a little snack, checked in and were told that we'd have to wait...a bed was not available for us yet. That makes me laugh because I am such an on time person.  If you tell me to be there 5 minutes before, I'll be there 10 minutes before.  I am so prompt and it drives me crazy when we go to doctor appointments and everyone is late.  I'm learning to let that go and to readjust my times...it's ok to be 5 minutes late, I will have to wait less and they will not cancel my appointment, they will happily take my money. 

Around 3:30 we finally got our room and we settled in.  Jimmy came in to "do" Mia's hair.  We showed her the extensions and talked about the sticky glue and she was ok with all of that.  She was even ok with Jimmy's blow dryer (a tiny air gun).  What she didn't like was the way the air gun made the glue very cold on her head.  So, every time he glued a lead down, she fussed.  But, she was a trooper and 23 leads later, she was done and that was the worst of the worst.  It was so minimal, which has been so different than any other hospital stay. 



She was settled in her bed and they had a video monitoring her, that way they could visually see what was happening if she did have a seizure.  She pretty much watched videos the entire time.  She was happy as a clam to do that and since we got there too late to get anything from the play room, it was fine.  You do what you gotta do sometimes. 

Even though no one came and bothered us all night long (another hospital miracle), it was still a long night when you end up sleeping in the same hospital bed as your kid.  I did get enough sleep, but it was pretty restless sleep. 

This morning the team came and saw us and told us that her EEG showed no seizure activity, which is great.  Sometimes people who have seizures can be having seizures without any visible signs, so this was great news that there were no seizures happening.  Her brain did show some abnormal activity, which was to be expected.  It happens more at night when she is sleeping, which was explained to be normal because of the state that the brain is in when you sleep.  But nothing that is worrysome or troubling.  If you have too much abnormal activity, that can lead to seizures, but hers were not. 

So, praise God for a great report!  That's not to say that she hasn't had some isolated seizures in the past few weeks, but nothing underlying is happening.  So, going forward we will continue with our current medication and we will keep an eye out for unusual activity and if it continues, we could change her medicine or look into other reasons why this is happening. 

She was happy to leave and when we were walking out she told me, "Mom, I do not like doctors or hospitals."  Which made me smile, because that is the Mia I know.  She has her opinions and we are grateful for them. 

Thursday, January 22, 2015

Testing

Over the past couple of weeks, Mia has had some moments where her behavior has been unusual and possibly indicative of seizure activity.  It's happened three times and after letting her neurologist know, he thinks it is in our best interest to do an overnight EEG study on Mia to see what's happening before we adjust any of her seizure medicine.  So, next Tuesday (assuming all goes as planned), we will be heading to UCLA to do an overnight study. 

She had one outpatient EEG done when she was less than 3, so quite a long time ago.  It was a short one, it only lasted an hour or so.  This one will be much more extensive.  In particular, she doesn't like me even mentioning the doctor, so please pray that she would be at ease when we do go down there.  I always debate about when to let her know that something is happening, especially as she is getting older and more aware of things.  I think we will discuss it a few days before to prepare her and hopefully it will be an easy overnight trip. 

It's not painful, but they do stick a ton (yes, literally a ton) of electrodes all over your head to map your brain activity.  I imagine that will not be comfortable and especially with sleeping, so prayer that it go smoothly and as painless as possible for her would be awesome.  There was a mention that we might have to stay an extra day if they don't get what they are looking for that night, so hopefully that will not be the case.

On a side note, they found our suitcase!  It went to Georgia instead of North Carolina.  We got it back last week, so it had a bit longer of a vacation than us, but it did make it back!  That was awesome because while we can replace all the stuff that was in it, medical supplies are expensive.  So it was a praise and a blessing to get it back. 

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