Tuesday, June 28, 2016

A Much Needed Update

Is it summer yet?  As of today, I can officially say it is.  June tends to be a bit more chaotic because for the last two years I have been co-director of crafts at our church's VBS.  It's a fun job, but can be exhausting too.  Thankfully my co-director is AWESOME and I couldn't do it without her.  But, it just seems like everything revolves around making that happen in June. 

The kids had a blast at VBS.  It was just a great week for them and I love how excited they were about going.  We've listened to the music CD of VBS songs on repeat for the last month, so I was rather surprised when it came on in the car today and everyone still got excited.  Asher said, "this is my favorite." 

The kids have been doing swim lessons every day and I'm excited to report that both Calvin and Asher can swim!  How crazy is that?  Their teacher has them jumping in or sliding in and then swimming to the side on their own.  Neither of them can swim the length of the pool, and Calvin can definitely swim further than Asher, but I'm so impressed with how much they have improved.  Mia is right there too and while she readily tries and works on all the skills, she just has a tougher time getting it all together than the boys.  But, I think with enough practice, she too will get it. 

Speaking of Mia, she continues to be seizure free!  Praise God!  We have started to wean her off one of her meds very slowly.  We are being cautious, but realize also that she's probably on a bit too much medication as she gets really sleepy during the afternoon.  She is also completely healed from her surgery and doing really well. 

We are looking forward to relaxing over the next few weeks as we enjoy our first days of summer!

Friday, June 03, 2016


We made it home late on Thursday evening.  It was so nice to be able to fly home and not drive especially since we ended up staying longer than I anticipated. 

Mia is doing really well.  It always amazes me how quickly kids bounce back after surgery. 

Before her surgery date, we had to meet with several specialties to get her cleared for surgery because of her complicated history.  One of those was neurology because of her ongoing seizures.  They recommended that we increase one of her meds just a little bit to bridge us through surgery since the body is prone to more seizures during a surgery and recovery.  So the Tuesday before surgery, we increased the one med just a tiny bit for her AM dose.  Up through her surgery, she was still having daily seizures.  The day after her surgery she had 3 seizures.  But then, amazingly, they stopped.  We haven't had a seizure since last week Saturday.  There have been a few times when she zones and I wonder if it is an absence seizure, but they are very brief and it could just be exhaustion and recovery from her surgery.  We are hopeful that in the next few weeks we can determine, as she gets rested, if she indeed is seizure free.  Right now, we are just so grateful.  Every day without a seizure is a blessing.  Thank you, thank you, thank you God!!!
There was an error in this gadget