Snooky Great

Why is it always such a long day when we go to LA? Probably because we had to get up bright and early to make it to our 9am appointment...and you never know what you'll get for traffic. Needless to say we did make it after one stop because Mia got so angry in her car seat that she made herself throw up. :( Thankfully Mommy had an extra outfit along...I guess this is why you always pack so much and hope you never need to use it!

We got to the helmet place first and they LOVED Mia's painted helmet. They thought it was so adorable! They took measurements of her head and it is a wee bit better, please pray that as she continues to grow her head will shape up normally...before the sutures fuse together again permanently. Mostly we are concerned about the front of her head, so please pray for that to end up normal.

After the helmet place we went to UCLA to see Mia's cardiologist. He had mentioned earlier that heart surgery would probably be next, but after seeing her and discussing with his colleagues they think waiting a bit would be better. Her PA Band is still doing the job it needs to do and all of her stats were great so his thought would be to give her another 9 months to a year to grow and then think about the heart surgery. Of course that could change if her stats started to decline, but as long as she was healthy they would like to wait. And that's ok with us too because we want to give her some time to do baby things...like learn to crawl and walk, etc.

Just to make sure the PA Band and her heart looked ok we went upstairs and she had an Echocardiogram done. And the gal who did it said everything looked real nice.

After that we went to visit some friends who's son is in the hospital here...you may remember us mentioning for you to pray for baby Gabriel awhile back. Anyway, we saw him and his parents, they are doing really well...real close to going home. Gabriel is doing much better, but still needs lots of prayer, so if you think of him, pray for him also. Pray that he would regain eating completely by himself and that he would continue to show signs of cognitive development. They are so thankful for the prayers, like us.

We also got Mia's EEG results from two weeks ago. The results said that their were some abnormalities, but no seizures at the moment. At first it made us real sad because we wanted it to say that everything was normal, we've seen how much God has healed her already, but then we agreed that God has taken care of Mia so well and that He'll continue to do so if it is in His will and we know that it doesn't matter what the results say...God is so much bigger than that, and we continue to rest in that hope and that peace.

So what is next for Mia...we are going to talk to her intestinal surgeon and see when he would like to do her next two surgeries because it looks like those will come before the heart. Pray that we would have patience to wait upon God's timing for this and pray that the doctors would have wisdom for scheduling and knowing what the right time is also.

Thank you so much for praying for Mia, it is such a blessing to us.