Snooky Great

Yesterday Brad and I went to LA with Mia for an appointment with CHLA (Children's Hospital Los Angeles) with the head of their division that deals with craniosynostosis. His opinion of Mia's head is that it might need to have another surgery to correct the skull shape. He doesn't think it is impeding the growth of her brain, but cosmetically we might want to get it fixed. He also said that maybe they could camouflage it later in life with some bone grafts, but because it is quite a difference that might not be feasible. He wouldn't want to do anything until her heart was fixed and we got another CT scan of her skull to give him more of an idea of what was going on with the plates. He also gave us a different helmet person to talk to who he thinks may possibly have a better idea of how to proceed with her head, so we've called her and are waiting to hear back from her. We will at least have her take a look at Mia's helmet and see what her thoughts are for reshaping her head. Because a child's head is still growing, but slowly, we are praying that the helmet will correct whatever is going on. And as you know, her head hasn't really grown in the last month, so please be praying that it would continue to grow and the helmet would work to correct the misshapen head. Pray for wisdom for us regarding future surgeries because of her past experience we are hesitant to go forward with this, but know that teasing can be a huge experience for children also. We think she looks beautiful, but not all others might hold to the same opinion.

We also had some measurements at her current helmet place done and her head is the same shape as last month, which follows along with no growth change either. Please keep that in prayer. Please also pray for her cardiac doctors on Thursday as they evaluate whether or not now is the right time to proceed with her heart surgery. Lots to pray for, we'll keep you updated as we learn more.