Thursday, January 15, 2009

Monday I went to Children's Hospital Los Angeles to have them take another look at Mia's skull. The plastic surgeon thinks that the only way to correct her head is to do another skull surgery. As you can imagine, my heart sank into my stomach when he told me that. He thinks her head is too tall and he'd like to take some off the top to lessen the height, he then would like to fix the front at the same time. He said we can wait to fix the front until she is 5 or 6, but he wouldn't be able to take away the height from the top of her head at that point, so that's why he'd like to do it now instead. Please pray for us in a decision regarding this, we don't want her to have to go through surgery again and this is only cosmetic, but at the same time, we know that teasing is rampant with kids who look or act different. So there's a lot of psychological implications regarding this. Sometimes when I look at her head I do think it is tall, but then sometimes I don't, so please pray for wise discernment regarding this, if we do the surgery it would happen fairly soon...in the next couple of months.

We also saw an opthamologist while we were there and she said that Mia is near-sighted already! We are just going to monitor it and she'll be checked out again in another 4 months to see if there is any change, if there isn't then she won't need glasses, but if there is, she might be getting glasses already!

It ended up being a very long day, we were there from 8-5 and so we were thankful to finally get back to Bakersfield that evening. The next day we headed back to LA for a helmet fitting. That went well, she made some minor adjustments and we'll follow up in another month with her.

Today we started therapy again! Mia is doing really well and she continues to make progress...she just started using her pincer grasp, and we'll continue to work on those fine motor skills. Pray that she'd start crawling and walking, I know she wants to so bad and I know it is completely possible, nothing is impossible with God! So pray for our patience and for her to gain those skills.

Sleeping is definitely hit and miss, last night there was one feeding, but the night before 2-3...she's eating so much more, which is great, but we want her to do all of it in the day! And she's putting on weight, she's now 17 pounds 12 ounces...I feel like there is hope at getting to 20 pounds in the next couple of months. That would be so nice!

4 comments:

Eliza said...

Lisa, what a decision you face. We will be praying for wisdom and discernment for you.

I'm so happy she's gaining weight! Hurray!

Anonymous said...

Lisa,
We'll be praying for you. We are happy she is gaining weight.I hope
she get s at better in sleeping, for you.
She is so cute. We have been saving almost all of her pictures.
Still can't wait to give her hugs and kisses.
Auntie Dar

9ndhouse- Katie said...

That's a big descision, I'll be praying for you. She is a cutie, and will moving around into more things than you can keep up with before you know it!!! The Lord knows just what she needs when she needs it! :-)

Lita Norsworthy said...

Oh what decisions you face. . . We shall be keeping you in our prayers. Give Miss Mia a hug and a kiss for us!!!!
Love & prayers,
Lita and Galen