Yesterday we went to LA to see the craniofacial clinic at UCLA. Even though we've decided to stick with Children's Hospital LA and their plastic surgeon for any future skull surgeries for Mia (which we aren't planning at the moment), we still thought it might be wise to continue to be seen by UCLA because the craniofacial clinic is more than just the skull surgeon, it's also alot of different doctors assessing areas of the head, like dentists and ear, nose, throat doctors...it also includes the genetics team, so anyway, we were there yesterday. We didn't learn too much new information and were hoping to get some answers concerning Mia's snoring at night (yup, she snores), but it looks like we will have to make a separate appointment to assess that. The one good thing that came out of our visit is we got a prescription for Mia to be evaluated by a speech pathologist here in town and for her to then possibly start speech therapy. She still isn't talking and only makes a few soft sounds occassionally, but she does continue to learn more signs and so we keep working on those with her.
Tomorrow we go back to LA because she gets her glasses tomorrow and we are going to get her helmet fitted for them. And then hopefully we won't have to go back for awhile! Three times in one week is too much.
Today at school they are doing a unit on "All About Me" and so they have these cute, creative activities for the kids to do, well, today was making a foot and a hand print. Mia just thought it was so silly that they were painting her hand red and her foot blue, she giggle when they painted her foot because it tickled. It was really cute. I'm excited to compare the prints to the prints taken when she was born because I forget how little she was sometimes.
Mia is making more and more progress with leg strength. At therapy we work on walking behind a machine that we push. She isn't strapped in to anything, she just hangs on the handles and pushes it around. She's come a long way in the past few months, so keep on praying for more strength and balance and I know we will get to walking one of these days!
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