Thursday, January 22, 2015


Over the past couple of weeks, Mia has had some moments where her behavior has been unusual and possibly indicative of seizure activity.  It's happened three times and after letting her neurologist know, he thinks it is in our best interest to do an overnight EEG study on Mia to see what's happening before we adjust any of her seizure medicine.  So, next Tuesday (assuming all goes as planned), we will be heading to UCLA to do an overnight study. 

She had one outpatient EEG done when she was less than 3, so quite a long time ago.  It was a short one, it only lasted an hour or so.  This one will be much more extensive.  In particular, she doesn't like me even mentioning the doctor, so please pray that she would be at ease when we do go down there.  I always debate about when to let her know that something is happening, especially as she is getting older and more aware of things.  I think we will discuss it a few days before to prepare her and hopefully it will be an easy overnight trip. 

It's not painful, but they do stick a ton (yes, literally a ton) of electrodes all over your head to map your brain activity.  I imagine that will not be comfortable and especially with sleeping, so prayer that it go smoothly and as painless as possible for her would be awesome.  There was a mention that we might have to stay an extra day if they don't get what they are looking for that night, so hopefully that will not be the case.

On a side note, they found our suitcase!  It went to Georgia instead of North Carolina.  We got it back last week, so it had a bit longer of a vacation than us, but it did make it back!  That was awesome because while we can replace all the stuff that was in it, medical supplies are expensive.  So it was a praise and a blessing to get it back. 

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