Melting Mama's Heart

A sweet moment just happened with me and my baby boy.  Well, he's not a baby anymore, but he'll always be my baby boy.  I was lying down with him and singing songs to him right before nap time.  Our usual routine.  He leaned over and kissed me, and then said, "I love you."  And just to make sure I got it, he did it three more times.  Talk about melting a Mama's heart.  I tell him those words every day, today is the first day he has ever said them back to me.  So sweet!

Mia is still having seizures.  We've added in a second medicine, but because we have to gradually introduce it to her, we are not at full dosage for the new medicine yet.  It will be at least another 10 days before we reach the full dosage, so it's tough for us to watch her to continue to have seizures and not be able to do anything about it.  Thank you for continuing to think of her and pray for her, we so appreciate it! 

A Much Needed Update!

It's been a month!  I think that is the longest stretch I've gone without writing.  You see, things have gotten crazy and I got sick.  Not a really good combination, but when mom's sick, everything gets put on the back burner. 

Recently, Mia started having seizures daily, so we ended up going down to UCLA last week and doing another overnight EEG.  This time they did capture a seizure on video and connected to the electrodes.  Praise God!  And so they upped her medicine and we were hoping that would be the answer.  It took a little while to adjust to the new dosage and this past Wednesday, Thursday and Friday we were finally seizure free!  I was so excited because I thought that meant it was finally working, but then today, Saturday, she has had 3 seizures.  Sigh.

So, we called down to UCLA and spoke with the neurologist team and we are going to up her dosage some more.  Please be praying with us that this is what she needs to be seizure free.  Our God is amazing and we want to trust Him and His plan for our little girl.