Today I took Mia to LA with her Grandma Cheri. We had an appointment with her intestinal surgeon to decide what would be the best next thing for Mia. It was a really good visit. He wants to schedule her anal opening surgery sometime in the near future (whatever works best for both of us). He was looking at the dye studies she had done and he'd like to do one more again, but this time when she is out in the operating room prior to the surgery. He thinks that maybe they didn't use enough pressure when they put the dye in her intestine and that's why they couldn't see clearly where it attaches. He also thinks that maybe there was some mucus in her intestine and that's why the dye kind of stops when it gets near the vagina. He is still very hopeful that her intestine is lower down than what the picture suggested, but won't know for certain until the day of the surgery. So please pray for scheduling of that surgery and that everything would go smoothly. Pray also that after all is done that she'll have control over her bowel movements because that is still an uncertainty at this point.
Our second stop was at the helmet place where they measured Mia and there was no change from her appointment a few weeks ago, so pray that her brain would keep growing and that we'd have improvements wearing the helmet. The neurologist said her brain would probably grow at a slower rate, so pray that brain growth would keep up like a normal baby.
After that we headed home, but we noticed Mia seemed slightly hot all morning, like she had a low grade fever, so we stopped off at Rite-Aid and picked up some tylenol for her (note to self, bring tylenol). We have to be really cautious with fevers because sometimes they can cause seizures in babies, so we really want to minimize that risk with her. Needless to say, she was a normal temp when we got home, pray that she wouldn't have anymore fever and that there isn't something more serious underlying this. It could possibly even be a teething thing, we just aren't sure at this point, but are thankful her temp is normal as of now.
1 comment:
Hey! Thanks for your comment on my blog. You have such an adorable little girl, what a blessing!! How wonderful that the Lord has put so many people in place to encourage and pray for you and for her. Finding another baby Mia is sooo neat! Yes, we are a big family, rowdy most of the time but having the time of our lives. We homeschool and are enjoying our journey. As your husband so well put it, we aren't driving either. The Lord has truly blessed us. You asked how we do it with so many, before our oldest was born someone gave us a book. It was "To Train Up a Child" by Michael Pearl (www.nogreaterjoy.org). It gave us a foundation to raise our children in the way they should go. They are all joyfull and truly a blessing. Mia is in our prayers. Sorry to babble on! :-) Katie
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